Comment: A step change for palliative care … but more evidence is needed David Praill and Claire Morris pp 161-161 As we write on the eve of an historic event – that is, the first WHO dedicated palliative care resolution1 being discussed at the 67th World Health Assembly in Geneva in May 2014 – we are delighted with the joint publication, by the Worldwide Palliative Care Alliance and the WHO, of the first Global Atlas on Palliative Care at the End of Life.
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Wake up, sleep is important! Managing sleep disturbance in patients with advanced cancer Gunnhild Jakobsen, Anne Kari Knudsen and Pål Klepstad pp 162-165 Sleep disturbance is a relatively common, but often neglected, problem in advanced cancer. Gunnhild Jakobsen, Anne Kari Knudsen and Pål Klepstad explain how to screen for sleep disturbance in cancer patients and outline the available treatment options.
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Leadership of a palliative care team – a personal view Matías Najún and Carlos Centeno pp 166-169 What does the role of team leader in palliative care entail? What are the questions that arise for a palliative care team leader in daily practice? Matías Najún and Carlos Centeno reflect on the role and its inherent challenges.
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Case study masterclass 75: Making decisions regarding artificial hydration and nutrition in an older woman with advanced dementia Michael Tapley and Ann Regan pp 170-171 Vonnie is in her 70s and has a history of vascular dementia. She is from the West Indies but has lived most of her life in the UK. Six months ago, she had a cerebral vascular accident. Up until then, her dementia had followed a gradual pattern of deterioration.
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Case study masterclass 74 answers: Withdrawing non-invasive ventilation in a patient with motor neurone disease Andrew Jenks pp 172-172
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Developing a complex intervention to improve advance care planning for care home residents Tamsin McGlinchey, Stephen Mason, Philip Saltmarsh, Maureen Gambles, Gerard Corcoran, Rebecca Bancroft and John E Ellershaw pp 173-176 A project is under way in the North-West of England to improve planning for future care for residents living in care homes. Tamsin McGlinchey, Stephen Mason, Philip Saltmarsh, Maureen Gambles, Gerard Corcoran, Rebecca Bancroft and John E Ellershaw explain how this is being conducted using the Medical Research Council complex intervention guidance, process mapping and nominal group technique.
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A review of end-of-life care services in Cumbria using the NICE quality standards Rachael Davies and Jayne Denney pp 177-179 The Cumbria Partnership NHS Foundation Trust undertook a review of end-of-life services using the National Institute for Health and Care Excellence quality standards as a reference. Rachael Davies and Jayne Denney describe the method and outcomes.
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Book review: Radiation Oncology in Palliative Cancer Care Won-Ho Edward Park pp 179-179 Radiotherapy is an important tool in the management of cancer. While radical treatments are well protocoled and widely cited in books and guidelines, palliative radiotherapy is less well publicised. This book addresses this paucity, offering debate on the evidence base available and guidance on how to achieve good palliation.
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The Global Atlas of Palliative Care at the End of Life: an advocacy tool Stephen R O'Connor pp 180-183 Advocating palliative care without the basic facts about the global situation is difficult. The first Global Atlas of Palliative Care at the End of Life, jointly published by the WHO and Worldwide Palliative Care Alliance, provides some hard data. Stephen R Connor reports.
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Giving voice to life: training volunteer biographers at Mary Potter Hospice Vivienne Pender pp 184-187 The purpose of palliative care biography is to record the unique voice of the dying person, for the person themselves and also for their family and friends. Vivienne Pender explains how volunteer biographers are trained at Mary Potter Hospice in New Zealand.
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Is religion harmful or beneficial at the end of life? Nimisha Panchmatia pp 188-192 Nimisha Panchmatia has reviewed the literature in an attempt to understand the role and impact – whether positive or negative – of religion and spirituality for patients nearing the end of life.
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Book review: Palliative Medicine - A Case-based Manual, 3rd edition Jane Lewington pp 192-192 Now in its third edition, this comprehensive and clear book, which stands out among other palliative care textbooks due to its competency-based approach, has been updated throughout and several new chapters have been added.
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Introducing the EAPC Steering Group on Medical Education and Training Frank Elsner, Stephen Mason, Heidi Blumhuber, Carlos Centeno, Gianluigi Cetto, Franco de Conno, John E Ellershaw, Steffen Eychmüller, Marilène Filbet and Philip Larkin pp 193-195 Frank Elsner, Stephen Mason, Heidi Blumhuber, Carlos Centeno, Gianluigi Cetto, Franco de Conno, John E Ellershaw, Steffen Eychmüller, Marilène Filbet and Philip Larkin present the activities of the European Association for Palliative Care (EAPC) in the area of medical education and training, including a number of task forces and projects.
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The Hospice Casa Sperantei holiday club: play, arts and music therapy for paediatric patients in Romania Gina Vlasceanu pp 196-200 Every summer since 2011, between 30 and 45 children attend a five-day holiday club organised by Hospice Casa Sperantei in Romania. Gina Vlasceanu explains how the activities help them cope with the difficulties of life-limiting or life-threatening disease.
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Letter to the Editor David Fearon and Abdallahi Ould Bouhabib pp 201-201 Sub-Saharan Africa is often the main focus of palliative care research in Africa. It was therefore greatly encouraging to read the recent series of articles in the European Journal of Palliative Care, which covered the situation across the whole continent.
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Multidisciplinary palliative care workshops in China Norbert Krumm, Liu Yizhao, Feng Yi and Frank Elsner pp 202-203 In 2011, palliative care professionals from RWTH Aachen University Hospital in Germany initiated a collaboration with the Department of Anaesthesiology and Pain Medicine at the Beijing University People’s Hospital in China. This includes educational and research activities, as Norbert Krumm, Liu Yizhao, Feng Yi and Frank Elsner report.
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EJPC Palliative Care Policy Development Award
pp 204-204 Dr Olga Usenko, a Russian palliative care advocate, was unveiled as the winner of the first EJPC Palliative Care Policy Development Award on 7 June 2014 at the 8th EAPC World Research Congress in Lleida. She is recognised for her relentless efforts to improve palliative care and access to pain relief in Russia.
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European insight: Lithuania has opened up to palliative care Arvydas Šeškevicius pp 205-207 Before the early 1990s, hardly anybody in Lithuania had heard about palliative care. Since the Baltic state became independent again in 1990, it has made rapid progress in recognising and developing palliative care, thanks in no small part to the Lithuanian Palliative Medicine Association.
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