Comment: The challenges of end-of-life care in people with dementia
Alistair Burns and Bee Wee
pp 57-57
Dementia is one of the biggest health- and social care challenges facing our societies. The latest estimates say that there are 44 million people with dementia worldwide and 6.8 million in Europe, numbers that are set to double by 2050.
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What influences the place of care and death in people with advanced dementia?
Marjolein Gysels, Bridget Johnston, Claudia Bausewein, Hristina Petkova and Fliss EM Murtagh
pp 58-63
There are many outstanding questions regarding the place of care and death in people with dementia. Marjolein Gysels, Bridget Johnston, Claudia Bausewein, Hristina Petkova and Fliss EM Murtagh have conducted a systematic review of the available qualitative evidence.
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Book review: Practical Management of Complex Cancer Pain
Johan Byran
pp 63-63
In my early years, the ‘cheese and onion’ Oxford Clinical Handbook was a staple in the medical students’ diet. This book mimics its successful formula by providing copious detail without unnecessary embellishments, and is a welcome addition to the Oxford Specialist Handbooks series.
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Mindfulness for resilience – a self-care strategy for staff working with emotionally distressed individuals
Margaret O’Connor and Suzanne Peyton
pp 64-67
To avoid burnout, professionals who care for emotionally distressed individuals must develop self-care strategies. Margaret O’Connor and Suzanne Peyton report on a pilot project conducted in Melbourne, Australia, that has demonstrated potential benefits of mindfulness as a self-care strategy for palliative care staff.
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Case study masterclass 79: Supporting a young man with acute myeloid leukaemia and his family
Stephanie Shayler and Jonathan Lancashire
pp 68-69
Tom is a 32-year-old self-employed electrician who lives with his wife Sarah in a two-bedroom terraced house. Their two boys, Kyle who is 8 and Sam who is 6, attend a local school where Sarah works three days a week as a classroom assistant. Tom has had asthma since childhood, but this is well controlled using a salbutamol inhaler as required.
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Case study masterclass 78 answers: Managing difficult dynamics and communication issues within a family from abroad
Katherine Bevan
pp 70-70
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Helping to improve care planning and co-ordination for people with dementia
Mary Mc Colgan
pp 71-73
The 9th Annual Conference on Dementia and End of Life Care, organised by the National Council for Palliative Care, took place in London in December 2014. Mary Mc Colgan reports on this important forum for people working in dementia and end-of-life care.
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End-of-life care for cystic fibrosis patients – part 1
Julia Nightingale and Irfan Shafiq
pp 74-77
From lung transplantation to advance care planning, from symptom control to place of death, Julia Nightingale and Irfan Shafiq review the key issues arising when caring for patients suffering from cystic fibrosis. This paper is published in two parts
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A Day in the Life of Maria Kavanagh, Triage Nurse Specialist in Palliative Care
Maria Kavanagh
pp 78-79
St Richard’s Hospice serves a population of nearly 300,000 people across 32 general practices, providing specialist palliative care in the form of inpatient, day hospice, hospice at home, and community nursing services. It also gives patients access to services such as physiotherapy, complementary therapies and occupational therapy. I work as a Triage Nurse Specialist, making first contact with patients and families and handing referrals to the community nurse specialist team.
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‘We cannot do it without you’ – the impact of volunteers in UK hospices
Ros Scott
pp 80-83
Many independant UK hospices were founded, and are still supported, by volunteers. Ros Scott undertook research with volunteers, trustees and senior staff members in 32 hospices to explore what roles volunteers play and how much they contribute.
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Integrated end-of-life care services – the Greenwich Care Partnership
Kate Heaps and Di Marks-Maran
pp 84-89
There is often insufficient support in the community to enable people to die at home. Kate Heaps and Di Marks-Maran describe an integrated care project established in 2011 in the London borough of Greenwich, which enables more patients, and their carers, to receive appropriate care and support in their homes at the end of life.
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Spiritual care education: results from an EAPC survey
Piret Paal, Carlo Leget and Andrew Goodhead
pp 91-95
How are healthcare professionals trained in spiritual care? To find out, the European Association for Palliative Care (EAPC) Taskforce on Spiritual Care in Palliative Care has surveyed EAPC members. Piret Paal, Carlo Leget and Andrew Goodhead report on the results and formulate recommendations for improving spiritual care education.
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Role models: Carlo Leget, Ethicist and Vice-president of the European Association for Palliative Care
Carlo Leget
pp 96-97
In our ‘role models’ series, we profile leaders in palliative care, people who help set the agenda and influence policy in Europe and other parts of the world. Our ‘role model’ in this issue is Dutch professor and researcher Carlo Leget, who plays an active part in the EAPC and advocates the integration of spiritual care in palliative care.
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The nascent palliative care landscape of Indonesia
Christantie Effendy, Hana Rizmadewi Agustina, Martina Sinta Kristanti and Yvonne Engels
pp 98-101
Christantie Effendy, Hana Rizmadewi Agustina, Martina Sinta Kristanti and Yvonne Engels give us an overview of palliative care provision in the island nation of Indonesia, where support is available, mostly for cancer patients, in some of the main cities.
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European insight: Championing paediatric palliative care in Norway
Natasha Pedersen
pp 102-103
After decades of not paying much attention to the palliative needs of children with life-limiting illness, Norway is now developing its own paediatric palliative care guidelines. An organisation founded by a patient’s mother, Ja til Lindrende Enhet og Omsorg for Barn, has contributed to recent developments in the field.
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